I totally hear you on this!!
(Daughter cardiomyopathy) total grey area - Eva is a normal, healthy child.
I really know and understand the stress your under - we are still there! Its driving us insane.
If its helps - the NZIS here told us here that (Regarding our daughter);
As long as Surgery is not needed in the next 4-5 years then we might be OK.
I replyed more in my thread where we are upto.
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